We had a pretty uneventful weekend. Braxton played with friends and even rode his four wheeler with his friends on Thursday. SOOOOO.....
We almost made it. We almost made it to a year with no hospital stays.
Friday morning bright and early Braxton woke me up worried about his four wheeler. When I reassured him that the four wheeler was safe in the garage, he was rolling over to go back to sleep when I leaned down to kiss him, only to realize that he was hot.
First thoughts, " NO WAY!!"
Braxton has been "flirting" with a temp for weeks now but I figured it was just allergies and that it was no big deal. He has been complaining about a headache but nothing too big. Last month the headaches led to a blood transfusion the week before chemo.
So, at 1am I was up packing for me and the kids to drive the hour to Cincinnati with hopes that it was nothing and that his counts would be fine and that after a round of antibiotics he could go home. So often that has been the case I couldn't help but be hopeful.
There I was with 3 kids at 3:30 in the morning alone, one with a temp, a cantankerous 2 year old that needed to be in bed and my sweet baby boy.
It's as if life hits you in the forehead and says... "did you really think it was that easy". Lately I had let my guard down a little when it came to Brac. I have tried to make things as "normal" for him as I could. He is almost 5 and he is just now starting to ask why he has to take medicine and his friends don't. Makes me very glad that he only has 7 months left. Being on maintenance is not all a bed of roses like I had assumed when he was first diagnosed. He has been in the hospital multiple times for viral temps. And although he doesn't have to have treatment every week and although he appears to be a "normal" 4 year old, he is not.
He is still undergoing treatment for.... Leukemia.
So, as I packed our bags for the hospital. I had a moment where I just cried. I was mad that I was careless enough to "forget" that he was in maintenance and that his counts could still drop. We have become so relient on the IVIG therapy that when something as unexpected as a temp happens it kind of throws me for a loop.
Because he is on a cancer floor with other immuno compromised children and they were unsure of the cause of his temp he has been in "quarantine" of sorts. He is not allowed to leave his room and people have to gown and glove up when entering the room.
The first couple of nights, we did not know why he had the temp or the reason that not only was his white count and his ANC in the toilet (for lack of a better word) but whatever it was, was tearing up RBC's as well. He needed another blood transfusion while he was there. 2 in a month. Oh boy. We have, however, learned to entertain ourselves in those tiny rooms. I have learned to make balloon animals. {thanks a lot to youtube}
Fear is a funny thing. Especially when it dwells in a mother. I was scared. My stomach felt sick. When Braxton was diagnosed he only presented with a temp... his blood work was what confirmed our worst nightmares as a parent.
Saturday afternoon the doctor assured me that there was no sign of the Leukemia in his blood work and that nothing looked abnormal on his blood smear... (HUGE SIGH OF RELIEF) I could breathe... a little.
Later that day he went down for a CT of his head to see if the infection was in his sinuses ... TADAAAA... the source. So now he is on nasal sprays to try to "wash out" the infection as well as being on 3 weeks of antibiotics when he gets home.
Eron and Brac are now on the way home from Cincy ... Can't wait to see my boys. Brac has been absolutely pitiful and I have missed him the past couple of nights. My diet and work out regimen has gone down the toilet (for lack of a better word) for the weekend, I have been living on coffee and caffeinated drinks, sugar finger foods and NO sleep.
So that's my story for the weekend. Fun Fun!!
it's a dog
and a bunny