Oh My.... it is so nice to be back online.
I hate when my computer is down, but now I am back up and running (about a million miles an hour).
Easter has come and gone. I am so thankful that I have the privilege of being able to teach my children the true meaning of Easter. It is also so nice to start new traditions. The Easter Bunny left Brac and Zoe a really nice basket of goodies on the porch. Brac was very intrigued with the idea that he knocks and runs. :)
I forget sometimes the fun that I had as a kid. When things were so simple. I looked so forward to getting an Easter Basket full of goodies and a new dress to prance around in. My mom always made those times so special. I am so thankful for a good mama. Up until this year (still trying to figure out why this is) I have recieved an Easter basket. While I was pregnant with Brac, that Easter bunny brought me pickles and slim jims... I am hoping that he got lost along the way and that he will surely make a return visit.
I am just assuming this but I think that with every holiday that we have Brac and he is "normal" (I use that term extremely loosely) I will always remember the ones when he was so sick. I will remember always that on Easter of last year, he was barely 23 lbs. Bruised from head to toe because his platelets were so low. I will remember how pale he looked in his white suit.... so handsome still. I will remember that he had NO hair at all. I will remember that he was getting to know his little sister. I will remember that we were constantly worried that another hospital stay was in the near future. I will remember that only one week after Easter, he got a stomach bug that almost totally wiped him out with the potential to take him from us forever. He ended up in the hospital for a week. I will remember that throughout the month of April last year he was beginning physical therapy to correct the foot drop he developed from being in the bed for almost 3 weeks. Too weak to walk. I will always remember and always be abundantly thankful.
So with Easter gone, we are getting ready for a church meeting this weekend in a town close by. On top of making Zoe something to wear I am also making things to post on my website {COMING SOON} within the week. I am so excited. I am also excited that a portion of the proceeds will be going to my favorite Cancer Foundation. Kids of Childhood Cancer
A sneak peak... introducing Zozie Couture :)
I expect to have everything up and rolling this week so stay tuned and look for links. :)
On another note....
CHEMO AND A SPINAL TAP!!! YUCK!
This past monday (the day after Easter) Brac was due for his monthly chemo along with a spinal tap. (He has this done every 3 months, with chemo that goes into his spinal fluid).
He did well. Because he is put under anesthestia he can't eat anything until the procedure is over.... needless to say. No food and steroids does not mix. He amazes me at how brave he is. Once awake he had a list as long as MY arm of the foods that he wanted. He eats some of the weirdest combos of foods while he does his steroid week. The other morning he had waffles and pickles. UGH!!! Only my boy. He must crave salty foods while he is on these meds because he has already devoured 2 jars of pickles single handedly. Along with finishing 2 jars of pickles in 2 days he eats 2 bowls of cereal in the morning followed by a snack of applesauce or what ever else happens to catch his eye. He eats at least 3 hot dogs for lunch or 3 soft tacos, sometimes both and he eats 2 cans of raviloi at some point in the day. He is also EXTREMELY thirsty so he drinks several bottles of water a day. WHEW!!! I'm full just thinking about it.
He is feeling a little puny these days. Grumpy from the steroids and hungry all the time. And tired from the chemo. This never gets easier... just more bearable as time goes on. I don't know what is going on in his little body. We have learned that he has an amazing pain threshold. So he can be hard to read. Steroids also make him retain a lot of water so this involves middle of the night bed changes and wardrobe change. He gets cleaned up and heads right back to bed with no fuss at all. :) That's my boy.
I'll leave you with this.....
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| I said smile and this is what I got |
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| Such a handsome little fella |





